tag:blogger.com,1999:blog-932842985778393321.post8857492923433907353..comments2024-02-16T13:58:21.051+00:00Comments on Every day ups and downs, a diabetes blog: My pump problem and CGMS envyMikehttp://www.blogger.com/profile/09868706401223371920noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-932842985778393321.post-1909805897556873162011-03-13T20:57:50.760+00:002011-03-13T20:57:50.760+00:00Hi I have had a pump for 12 years in the UK. I hav...Hi I have had a pump for 12 years in the UK. I have had IDDM for 33 years since 4 years of age. I also privately fund CGMS. Both in combination have revolutionised my diabetes treatment. Having lived through the late 70s and 80s of relative darkness in diabetes awareness, discrimination and isolation. I completed two degrees with annorexia then bullimia, took illicit substances at universitym Angie Bishophttp://www.familiescountrywide.orgnoreply@blogger.comtag:blogger.com,1999:blog-932842985778393321.post-6368893597827004232011-03-02T14:06:58.233+00:002011-03-02T14:06:58.233+00:00Thanks for your comment Hamish. I completely agree...Thanks for your comment Hamish. I completely agree. I'm a firm believer that Carb Counting MUST be taught to T1s at diagnosis, with ongoing support thereafter. Posted about my soap box moment here: http://www.everydayupsanddowns.co.uk/2010/10/carb-counting-black-hole.htmlMikehttps://www.blogger.com/profile/09868706401223371920noreply@blogger.comtag:blogger.com,1999:blog-932842985778393321.post-58581392508171302362011-03-02T13:54:11.963+00:002011-03-02T13:54:11.963+00:00Anonymous - Carb counting is taught in several pro...Anonymous - Carb counting is taught in several programs run by the NHS - DAFNE nationally (Dose Adjustment for Normal Eating) and where I live the hospital in Windsor runs a course called CHOICE which I attend a few years ago. Either are well worth attending if you can.Hamishnoreply@blogger.comtag:blogger.com,1999:blog-932842985778393321.post-50872634254192227622010-09-17T14:33:17.500+01:002010-09-17T14:33:17.500+01:00Thank you all so much for your comments. Especiall...Thank you all so much for your comments. Especially the poster who HAS been able to acquire funding for their son's CGM while on MDI. So pleased that it has provided such tangible benefits. Well done for persevering in the face of what sounds like quite entrenched resistance.<br /><br />MMikehttps://www.blogger.com/profile/09868706401223371920noreply@blogger.comtag:blogger.com,1999:blog-932842985778393321.post-43339416018284829392010-09-17T14:21:12.124+01:002010-09-17T14:21:12.124+01:00Just for your info. We have managed to obtain a CG...Just for your info. We have managed to obtain a CGM (Freestyle Navigator) for my teenage son who is on MDI as he does not want a pump. Originally self funding but managed to get funding after fighting for 1 year with several tribunals. Still subject to 6 monthly reviews.<br />The technology is young (so far from perfect) but never the less, entirely wonderful, The CGM allows him to take action Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-932842985778393321.post-57132286864151262002010-09-16T14:01:09.964+01:002010-09-16T14:01:09.964+01:00Enjoyed your post! If you like your level of contr...Enjoyed your post! If you like your level of control and you've managed to fit diabetes care into your lifestyle, why change just for change's sake? If you don't like your level of control, have felt unable to do things you want to do, and/or cost is not a consideration, then it can sometimes pay off to try a "new experiment" in your ongoing one-person clinical trial that isKelly Rawlingshttp://twitter.com/KellyRawlingsnoreply@blogger.comtag:blogger.com,1999:blog-932842985778393321.post-65211189836271810092010-08-27T16:29:28.866+01:002010-08-27T16:29:28.866+01:00That's a very interesting point. I think you a...That's a very interesting point. I think you are right, they are both flawed systems, both with pros and cons, and as close as I've got to wanting a pump for all the benefits you mention I've just not quite gone over the hump yet. It certainly wouldn't surprise me at some point though, especially as the artificial pancreas looms ever closer (something like 3-4 years away I read Mikehttps://www.blogger.com/profile/09868706401223371920noreply@blogger.comtag:blogger.com,1999:blog-932842985778393321.post-1216170837538537782010-08-27T15:50:13.769+01:002010-08-27T15:50:13.769+01:00Having a pump is a very personal thing. For me, th...Having a pump is a very personal thing. For me, the benefits (steady trickle of insulin, not having to constantly remember to pick up my insulin before I go out) outweigh the cons (being constantly attached, higher chance of ketones, trying to find places to put the pump (I cant get on with it on my bra, so it usually remains attached to a belt)).<br />Its not 100%. Its not even 80%. For me, its Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-932842985778393321.post-26895199417255606042010-08-26T17:00:15.700+01:002010-08-26T17:00:15.700+01:00Mike, I know how you feel. I'm still not 100% ...Mike, I know how you feel. I'm still not 100% convinced about pumping as a practicality. It's the very fine control that has made me say yes, more than anything else. <br /><br />It isn't, nor will it ever be, right for everyone. And that's fine too! :)Beckyhttps://www.blogger.com/profile/09636135497470333265noreply@blogger.comtag:blogger.com,1999:blog-932842985778393321.post-88160490546666726222010-08-25T08:59:41.137+01:002010-08-25T08:59:41.137+01:00Absolutely! Close the loop already!Absolutely! Close the loop already!Mikehttps://www.blogger.com/profile/09868706401223371920noreply@blogger.comtag:blogger.com,1999:blog-932842985778393321.post-73738672375703076662010-08-25T01:59:10.942+01:002010-08-25T01:59:10.942+01:00I feel exactly the same about the pump at the mome...I feel exactly the same about the pump at the moment. I'm definitely holding out for the artificial pancreas!<br /><br />I would love to have a CGM for the time being though.<br /><br />Katie.Katie Dhttp://www.katieinoz.co.nrnoreply@blogger.comtag:blogger.com,1999:blog-932842985778393321.post-38435697816073415542010-08-24T09:25:48.251+01:002010-08-24T09:25:48.251+01:00Thanks Alison.
As I say, I may well change my mi...Thanks Alison. <br /><br />As I say, I may well change my mind tomorrow - your pumping-success-story is so very convincing :)Mikehttps://www.blogger.com/profile/09868706401223371920noreply@blogger.comtag:blogger.com,1999:blog-932842985778393321.post-44468905019345862722010-08-23T20:53:49.046+01:002010-08-23T20:53:49.046+01:00Great post Mike, sounds like you've really tho...Great post Mike, sounds like you've really thought it through. I love my pump and it gives me great results but it isn't a magic bullet, its just as much work as MDI and I could happily throw the thing out the window at times. <br /><br />Re CGM on MDI, I trialled CGM for a week while I was on MDI and it helped a lot, for all the reasons you listed. But, I did find the combo of pump and Alisonhttp://www.shootuporputup.co.uknoreply@blogger.comtag:blogger.com,1999:blog-932842985778393321.post-13067454114654627562010-08-23T09:42:44.817+01:002010-08-23T09:42:44.817+01:00Thanks Emma. Yes it'll be interesting to see w...Thanks Emma. Yes it'll be interesting to see what my team say at my next annual review. I do like to go armed with a few pointy questions - makes the whole thing much more fun!Mikehttps://www.blogger.com/profile/09868706401223371920noreply@blogger.comtag:blogger.com,1999:blog-932842985778393321.post-77499432865224694942010-08-22T21:04:50.211+01:002010-08-22T21:04:50.211+01:00Just found your blog and heaved a sigh of relief t...Just found your blog and heaved a sigh of relief to find a diabetes sufferer being so honest! I started using a pump just over a year ago, and had similar reservations to you. My control is definitely better now - but I often wonder if that's because switching to a pump motivated me more. Pumping is just as much work as MDI. My control is better, but for the first time in years I recently hadEmmahttps://www.blogger.com/profile/13476474927182241586noreply@blogger.com